https://ogma.newcastle.edu.au/vital/access/ /manager/Index en-au 5 Medicines for cancers in children: the WHO model for selection of essential medicines https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:28260 Wed 11 Apr 2018 11:22:34 AEST ]]> Access to cytotoxic medicines by children with cancer: a focus on low and middle income countries https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:24082 Thu 28 Oct 2021 13:02:20 AEDT ]]> Treatment of children with poor risk solid tumors by further escalation of the VETOPEC regimen including very high-dose cyclophosphamide and peripheral stem cell support: an Australian and New Zealand Children's Hematology and Oncology Group Study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:15288 Sat 24 Mar 2018 08:21:53 AEDT ]]> Vehicle refuelling, use of domestic wood heaters and the risk of childhood brain tumours: results from an Australian case-control study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:22801 Sat 24 Mar 2018 07:12:18 AEDT ]]> Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:49579 Mon 22 May 2023 11:19:14 AEST ]]> Long-term health-related quality of life in young childhood cancer survivors and their parents https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:47905 5 years postdiagnosis. Parents reported on their child's HRQoL (Kidscreen-10), and their own HRQoL (EQ-5D-5L). Parents rated their resilience and fear of cancer recurrence and listed their child's cancer-related late effects. Results: One hundred eighty-two parents of survivors (mean age = 12.4 years old and 9.7 years postdiagnosis) participated. Parent-reported child HRQoL was significantly lower than population norms (48.4 vs. 50.7, p < .009). Parents most commonly reported that their child experienced sadness and loneliness (18.1%). Experiencing more late effects and receiving treatments other than surgery were associated with worse child HRQoL. Parents’ average HRQoL was high (0.90) and no different to population norms. However 38.5% of parents reported HRQoL that was clinically meaningfully different from perfect health, and parents experienced more problems with anxiety/depression (43.4%) than population norms (24.7%, p < .0001). Worse child HRQoL, lower parent resilience, and higher fear of recurrence was associated with worse parent HRQoL. Conclusions: Parents report that young survivors experience small but significant ongoing reductions in HRQoL. While overall mean levels of HRQoL were no different to population norms, a subset of parents reported HRQoL that was clinically meaningfully different from perfect health. Managing young survivors’ late effects and improving parents’ resilience through survivorship may improve HRQoL in long-term survivorship.]]> Mon 06 Feb 2023 15:07:27 AEDT ]]>